Get involved! Send your photos, video, news & views by texting KS NEWS to 80360 or e-mail us
Stourport toddler battles 'one-in-a-million' cancer
7:00am Tuesday 27th August 2013 in News
Mother’s pride: Zoe Brownrigg applies suncream to her son Leighton. Picture: MATHEW GROWCOOT/HOTSPOT MEDIA.
A STOURPORT youngster who is overcoming a one-in-a-million form of cancer has been banished into darkness by his own immune system due to an allergy to the sun.
Two-year-old Leighton Brownrigg has been diagnosed with photosensitivity – the abnormal reaction of skin to light and sunlight.
The condition means he is not allowed to go outside and even has to cover up and wear high-strength suncream in the house.
The diagnosis is a cruel blow as the toddler is recovering from an extremely rare form of leukemia called juvenile myelomonocytic leukaemia. (JMML)
Since having a bone marrow transplant, Leighton has been left with no immune system, which doctors believes could have caused his photosensitivity.
His mum Zoe Brownrigg, 22, said: “He can only travel early in the morning or at night time but only in a car with tinted windows and air con.
“I have to keep the curtains at home closed and the blinds shut. He is living in darkness.”
The single mum has to apply factor 50-plus suncream to Leighton six times a day and bath him twice a day to prevent his skin from flaring up with painful rashes and sores.
Leighton is undergoing daily tests at Birmingham Children’s Hospital and goes to Rotherham General Hospital every two weeks for two days for specialist treatment using ultraviolet light.
Leighton was diagnosed with JMML in February last year and after waiting six months underwent a bone marrow transplant in August 2012.
Miss Brownrigg, a carer for dementia sufferers, had rushed him to hospital the previous November after a meningitis-type rash appeared on his body.
Since the transplant, he has been plagued with health problems, including chronic graft versus host disease, a complication which is associated with bone marrow transplants which has left him dependent on steroids.
His spleen and liver also ballooned to 15cm which is triple the normal size, meaning the toddler was not able to crawl or roll over when he was younger.
Miss Brownrigg is now fund-raising so she can buy a new car which has tinted windows and air conditioning so she can transport Leighton to and from the hospital without his skin flaring up.
She has set up a Facebook page called Leighton’s Fight, which has received hundreds of ‘likes’ and support from people.
Comments are closed on this article.