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'Suicide disease' sufferer aims to start group to ease pain
6:00am Friday 4th October 2013 in Local
A FATHER who told The Shuttle of his battle to beat “suicide disease” hopes to start a support group after receiving an overwhelming response to his story.
Since Mark Steadman’s plight featured exclusively on the front of last week’s edition, he has been inundated with positive emails and calls from other Trigeminal Neuralgia sufferers in Wyre Forest.
The disorder causes episodes of intense pain in the face and is often referred to as “suicide disease” as the pain is so excruciating sufferers are known to take their own lives.
After Mr Steadman bravely shared his battle with Shuttle readers and told how everyday tasks such as brushing his teeth and shaving could leave him in intense pain, calls came flooding into the newspaper’s office from sufferers who wanted to share their experiences with him.
The father of three said he had been “overwhelmed” by the response to his story so far.
He added: “Finally being able to speak to people who understand has been amazing. I have been overwhelmed with the response.
“We have talked about the condition, told our own stories and offered each other advice and tips on how to try and make things easier.
“We have exchanged telephone numbers and will, hopefully, be arranging to meet up in the near future. It would be nice to have our very own Wyre Forest support group.”
He added: “Telling my story locally has been great for me – people can finally realise what it’s been like with this condition.”
Mr Steadman will even be trying out a pain relief cream from a Shuttle reader in America, who contacted the paper. “Many thanks to everyone for their support,” he added.
The 38-year-old will be supporting the first Neuralgia International Awareness Day next Monday, when international monuments will be lit up across the globe.
He wants to raise awareness of the condition and is urging people to sign a petition at tnnme.com for the World Health Organisation to fund research.
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