NHS information sharing leaflets to be delivered to Wyre Forest residents

Kidderminster Shuttle: NHS information sharing leaflets to be delivered to Wyre Forest residents NHS information sharing leaflets to be delivered to Wyre Forest residents

LEAFLETS explaining how the NHS uses patient information will begin landing on the doormats of Wyre Forest households this month.

During the next month, every home in England will receive a "better information means better care" leaflet, explaining how the health service shares information about the care patients have received.

Health chiefs say sharing information helps ensure the quality and safety of services is consistent across the country and can also highlight different diseases and conditions which may require more NHS investment.

As explained in the leaflet, residents have the right to object to their data being used for purposes other than their direct care and can restrict their data being used by talking to their GP.

Dr Imran Rafi, chairman of the clinical innovation and research centre at the Royal College of General Pracitioners, said: "I fully support this initiative. GPs understand the importance of sharing information appropriately both as part of delivering clinical care and for wider uses, such as research and for planning NHS services.

"It is important patients understand how the NHS uses and shares their information and they feel they have been given a proper chance to participate. The spin-off is the potential for all NHS patients to benefit."

Dr Mark Davies, medical director at the health and social care information centre, added: "The centre was set up as the legal safe haven for protecting and managing patient information. We want everyone to feel confident their information is kept private and used in non-identifiable form to improve the quality of health and social care for everyone."

The NHS has been collecting similar information from hospitals for several decades but until now has been missing information about the quality of care provided across other parts of the NHS and social care services.

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9:14am Mon 6 Jan 14

theABB says...

More information below from the Health and Social Care Information Centre website, all the sub-systems data are used in for what purposes, including how data is linked across the sub-systems and made available for commercial use. Once this assumed consent process has taken place, patients will not be asked again for any further consent, but patient data will remain in the centralised system indefinitely and data will be available to all who request it, following the HSCIC guidelines. Patients cannot have their data deleted from the Health and Social Care System, only anonymised. This is an important initiative for NHS patients, and we only get one chance to decide for ourselves and our children, how freely we want personal confidential to be used, beyond direct medical care. Both now by current Government and data owners, and in the future on an unlimited basis by future Governments and future data owners. We do not yet know how future Governments may choose to use this information, but current plans are that there will be more data added in future. Take the opportunity to debate and discuss it fully with friends and family, and call the leaflet helpline to discuss, or on your next visit to he GP. Here is more detailed information and personal opinion from one GP: http://www.care-data
.info/ - It is important that each patient makes their own personal decision what is right for them.

"What is the Data Linkage and Extract Service? ref: http://systems.hscic
.gov.uk/ and http://www.hscic.gov
.uk/dles
The Health and Social Care Information Centre handles three different types of patient level data:
1. De-identified data for publication - data that can be publicly disclosed as it has been anonymised and there is a low risk of individuals being identified.
2. De-identified data for limited disclosure or access - data that has been through a process of pseudonymisation, however there remains a risk of individuals being identified.
3. Personal confidential data - data in which individuals are identified, or there is a high risk of individuals being identified.

Aggregate data is made available via the HSCIC's statistical publications and reports. The data underpinning them is type 1 (as above) and, where possible, this is released as Open Data. You can browse, search and filter these freely available documents and files using the HSCIC catalogue. The Data Linkage and Extract Service offers a range of products which enable customers to access type 2 and 3 data (as above). We can provide extracts from a range of individual and linked data sets and can add significant value to individual sets of data by combining and matching them at individual record level in a secure environment.
Data can only be made available to those who meet the HSCIC's robust Information Governance standards to protect and control how data is managed and, where applicable, an appropriate legal basis is in place.

Who are our products for?
Our (data) products are used by a wide range of customers including academics and universities, healthcare commissioners and providers, third sector organisations, information intermediaries and commercial organisations including life science companies. To find out how our products are being used, please visit our case studies and testimonials page. The data we supply is normally pseudonymised. We only provide identifiable data when there is a lawful basis to do so i.e. with patient consent, approval under section 251 of the NHS Act 2006 which enables The Health Service (Control of Patient Information) Regulations 2002, or where appropriate statutory regulation is in place."

Data price list: http://www.hscic.gov
.uk/media/12443/data
-linkage-service-cha
rges-2013-2014-updat
ed/pdf/dles_service_
charges__2013_14_V10
_050913.pdf
More information below from the Health and Social Care Information Centre website, all the sub-systems data are used in for what purposes, including how data is linked across the sub-systems and made available for commercial use. Once this assumed consent process has taken place, patients will not be asked again for any further consent, but patient data will remain in the centralised system indefinitely and data will be available to all who request it, following the HSCIC guidelines. Patients cannot have their data deleted from the Health and Social Care System, only anonymised. This is an important initiative for NHS patients, and we only get one chance to decide for ourselves and our children, how freely we want personal confidential to be used, beyond direct medical care. Both now by current Government and data owners, and in the future on an unlimited basis by future Governments and future data owners. We do not yet know how future Governments may choose to use this information, but current plans are that there will be more data added in future. Take the opportunity to debate and discuss it fully with friends and family, and call the leaflet helpline to discuss, or on your next visit to he GP. Here is more detailed information and personal opinion from one GP: http://www.care-data .info/ - It is important that each patient makes their own personal decision what is right for them. "What is the Data Linkage and Extract Service? ref: http://systems.hscic .gov.uk/ and http://www.hscic.gov .uk/dles The Health and Social Care Information Centre handles three different types of patient level data: 1. De-identified data for publication - data that can be publicly disclosed as it has been anonymised and there is a low risk of individuals being identified. 2. De-identified data for limited disclosure or access - data that has been through a process of pseudonymisation, however there remains a risk of individuals being identified. 3. Personal confidential data - data in which individuals are identified, or there is a high risk of individuals being identified. Aggregate data is made available via the HSCIC's statistical publications and reports. The data underpinning them is type 1 (as above) and, where possible, this is released as Open Data. You can browse, search and filter these freely available documents and files using the HSCIC catalogue. The Data Linkage and Extract Service offers a range of products which enable customers to access type 2 and 3 data (as above). We can provide extracts from a range of individual and linked data sets and can add significant value to individual sets of data by combining and matching them at individual record level in a secure environment. Data can only be made available to those who meet the HSCIC's robust Information Governance standards to protect and control how data is managed and, where applicable, an appropriate legal basis is in place. Who are our products for? Our (data) products are used by a wide range of customers including academics and universities, healthcare commissioners and providers, third sector organisations, information intermediaries and commercial organisations including life science companies. To find out how our products are being used, please visit our case studies and testimonials page. The data we supply is normally pseudonymised. We only provide identifiable data when there is a lawful basis to do so i.e. with patient consent, approval under section 251 of the NHS Act 2006 which enables The Health Service (Control of Patient Information) Regulations 2002, or where appropriate statutory regulation is in place." Data price list: http://www.hscic.gov .uk/media/12443/data -linkage-service-cha rges-2013-2014-updat ed/pdf/dles_service_ charges__2013_14_V10 _050913.pdf theABB
  • Score: -1

9:16am Mon 6 Jan 14

Wagtail59 says...

.I thought the authorities were keen to avoid wasting NHS resources. Is this really necessary?
.I thought the authorities were keen to avoid wasting NHS resources. Is this really necessary? Wagtail59
  • Score: 2

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